Suyog’s family felt hopeless when they learned he had Gaucher disease, a rare disease that was virtually unknown in India in 1999. By this point, his liver and spleen had swollen considerably, and he had difficulty breathing. When they learned treatments existed, his parents wrote to Genzyme to see if there was any way assistance could be provided to their son. They were delighted to hear back with the news that their son would be receiving treatment free of charge.
Today, the humanitarian programs in Egypt, China and India make up almost half of our humanitarian efforts around the world. We’ve established country specific programs in these markets managed by a team of local medical experts that work to ensure the programs meet the unique needs of the patients we serve.
Over the last two decades, our humanitarian programs have evolved and expanded to now support five different lysosomal storage disorder communities around the world.
“These are only the stories of a few patients,” said Cristiana Salgado-Braga, Sanofi Genzyme’s Global Head of Rare Hematology. “However, they exemplify the spirit and determination of hundreds of Gaucher disease patients around the world who have received therapy through our Humanitarian program over the past 26 years.”